INFORMATION ON:
Neuroendocrine cancer:
Pancreatic Cancer:
Whipple Warriors in the UK:
https://www.facebook.com/groups/508517525927691/
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Whipple Warriors Grief Support:
https://www.facebook.com/groups/445605238849964/
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Post Whipple Pain Attacks:
https://www.facebook.com/groups/276500819031774/
Ampullary Cancer Survivors:
https://www.facebook.com/Ampullary-Cancer-Survivors-150314565048777/
Bile Duct Cancer Survivors:
https://www.facebook.com/groups/34003452319/
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Cholangiocarcinoma Survivors:
https://www.facebook.com/cholangiocarcinoma/
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Frantz Tumor (Solid Pseudopapillary Tumor) Survivors:
https://www.facebook.com/groups/245447985549997/
http://www.gistsupport.org/about-gist/what-is-gist.php
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NET Patient Foundation:ancreatic Cancer Action:
https://pancreaticcanceraction.org/
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https://www.pancreaticcancer.org.uk/
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North American NeuroEndrocrine Tumor Society:
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http://www.unicornfoundation.org.au/
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Need Help with Medication Costs?
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There are several organizations that you contact if you cannot afford your medication. Right now these are mainly US based organizations. We plan to add links to organizations in other countries as we become aware of them.
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Clinic of Angels - this non-profit organization helps chronically ill patients by providing financial resources to help in their medical care.
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NeedyMeds- this non-profit organization is an information resource devoted to helping people in need find assistance programs to help them afford their medications and costs related to health care.
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Bridges to Access - this organization offers non-oncology medines - at no cost - to patients that qualify
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Discount Drug Card Programs - For additional ways to obtain free or low-cost prescription drugs, try the following discount drug card program
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Partnership for Prescription Assistance- helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free
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GSK Access- provide GSK prescription medicines to qualified patients who are enrolled in a Medicare Part D Prescription Drug Plan and need help paying for treatment. The medicines covered by GSK:medicine list
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https://www.creon.com/cfcareforward- Assistance with Creon Costs.
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Assistance with Lodging:
Healthcare Hospitality Network- nationwide professional association of nonprofit organizations that provide lodging and support services to patients and families
American Cancer Society Hope Lodge- offers patients and caregivers a free, temporary place to stay when treatment is in another city
Miracle House - provides housing and support services to families and friends of those living with AIDS or Cancer, as well as the caregivers
Joe's House- online nationwide lodging resource for Cancer patients and their families who must travel away from home for medical treatment
Assistance with Travel:
ACA - The Air Care Alliance- nationwide league of humanitarian flying organization with volunteer pilots to provide patient transport
Angel Flight- volunteer pilots provide transportation for medically related needs
National Patient Travel Center- provides long-distance medical transportation
Corporate Angel Network- using empty seats on corporate aircrafts flying on routine business, Cancer patients fly free
Angel Bus - Motor Coach, Bus, Ground Transportation for Patients- providing ground transportation to patients in need
Angel Airlines for Life - strives to provide charitable airline tickets for distance care
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